Definitions/Types
Up Osteopetrosis Links Surgery Cases Definitions/Types Researchers Treatments Complications

 

The following list of links all refer to sites that discuss the definition and different "types" of osteopetrosis. The glossary of terms may be helpful to review so you become familiar with the terms associated with osteopetrosis. Many of the "types" are not well defined and a person can have symptoms from each of the different "types."  It is a very hard disease to be able to pinpoint the exact type.

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Autosomal Recessive Form of Osteopetrosis

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Autosomal Dominant Form of Osteopetrosis

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The Paget Foundation   - very helpful physician referral list by mail

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Information for Patients about Osteopetrosis

bulletSt. Jude's Children Research Hospital - Disease Info
bulletSt. Jude's Children Research Hospital - Clinical Studies
bulletWeill Medical College of Cornell University

Please feel free to write me at kalebsmom@core.com to share your personal experiences or ask questions regarding osteopetrosis.