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The following list of links all refer to sites that discuss the definition and different "types" of osteopetrosis. The glossary of terms may be helpful to review so you become familiar with the terms associated with osteopetrosis. Many of the "types" are not well defined and a person can have symptoms from each of the different "types." It is a very hard disease to be able to pinpoint the exact type.
Please feel free to write me at kalebsmom@core.com to share your personal experiences or ask questions regarding osteopetrosis. |