Cases

Recently, a mailing list was created to help families of children or adults who have been diagnosed with osteopetrosis. We hope to share our experiences in dealing with osteopetrosis and its effects on our children, including bone marrow transplants, alternative treatments and vision loss. If you would like to join this list, email me for details.

The following list of links all refer to sites of others who have had to face osteopetrosis.  Their stories are very encouraging and inspiring, and oh so touching.